Asking for help is never easy. Asking for a kidney? That feels nearly impossible at first. I know because I’ve been there—sitting with the weight of end-stage kidney failure, scared of what’s next, and wondering how to even begin telling people what I need.
But here’s what I’ve learned: sharing your story is one of the most powerful tools you have. The right person won’t know they can step forward unless they hear from you.
Here are some practical ways to share your journey and make your ask with courage and clarity:
1. Be Honest and Personal
People connect with stories, not statistics. Share what kidney disease looks like in your day-to-day life: the fatigue, the fluid restrictions, the dialysis sessions. Let people see the human side of your struggle. Honesty invites empathy.
Example: “I go to dialysis three times a week, four hours each time. It keeps me alive, but it’s exhausting. A transplant would give me back so much of the life I’ve lost.”
2. Use Social Media Wisely
Platforms like Facebook, Instagram, and TikTok can amplify your story to hundreds or thousands. Don’t be afraid to post regularly with updates—people need reminders. Use photos, short videos, or even live streams to help others feel close to your journey.
Tip: Share both struggles and wins. People want to cheer you on when things are hard and when you make progress.
3. Lean on Your Personal Networks
Your family, friends, coworkers, and community groups are often the first people willing to help. Don’t assume they know what you’re going through—many don’t understand kidney disease until you explain it.
Script: “I wanted to share something important with you. I’m looking for a living kidney donor. I know this is a big ask, but I want to let you know where I’m at. Even if you can’t donate, you can help me by sharing my story.”
4. Connect With Organizations Like Kidney Solutions
Groups like Kidney Solutions exist to mentor patients and guide them through the living donor process. They can help you:
- Build a clear donor search strategy.
- Navigate conversations you’re not sure how to have.
- Connect with mentors who’ve walked this road before you.
Having that support system makes the journey less overwhelming and less lonely.
5. Make Your Ask Clear
It can feel awkward, but clarity is kindness. Don’t leave people guessing about what you need. Let them know you’re looking for a living donor and explain how they can take the first step (such as contacting your transplant center for testing).
Example: “If you’d like to learn more about becoming a donor, here’s the number and website for my transplant center. Even starting the conversation helps.”
Final Thoughts
Sharing your story doesn’t mean begging—it means giving people the opportunity to step into your life-changing journey. Yes, it’s scary. But remember: people can’t say “yes” if they’re never asked.
I’m learning that courage is not the absence of fear—it’s asking anyway. And you don’t have to do it alone. With the help of your networks, social media, and organizations like Kidney Solutions, your story could connect you with the person who gives you the ultimate gift: a second chance at life.
By Jocelyn Paige Kelly
Jocelyn Paige Kelly is a YA author by day and an astrologer by night—a complex woman who juggles many roles with creativity and resilience. Through her writing, she brings to life stories that explore chronic illness, identity, and courage, while her work in astrology helps others find clarity and insight. Jocelyn’s unique blend of artistry and spirituality reflects her passion for storytelling, self-discovery, and guiding others toward hope.